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暴躁是我的中间名。

Along with growing taller, 埃维 is growing in feistiness. 九号彩票备用 has definite opinions about everything from 袜子 to 图书 to how she should eat. I didn't read on any of the 唐氏综合症 websites that there seems to be a theme of 倔强ness in our 孩子们 (although every kid is still different!). But as I've learned from other families, 倔强ness is a very real thing. First, she has the genes for 倔强ness from both sides of the 家庭. Then she seems to have the extra copy of special 倔强ness. But the thing is, she's a cute 倔强. 九号彩票备用 sticks out her lower lip and crosses her arms as she emits a "Gaaaah!" Which just makes me laugh 在 her. Most of the time.

Today I am not laughing. We decided last night to wean her off the iPad while she eats. I was inspired by the other 父母 on the tube-weaning Facebook group I joined, and while I was warned that it would be tough, it is still hard to start the journey. The first 2 meals were surprisingly fine. 九号彩票备用 在e 3 out of her usual 4 ounces. My 语音 was hoarse after 唱歌 every song I could think of, but I was pleased. Towards the end, I had to use the audio on my iPhone and let her listen to some 音乐, because I just couldn't sing anymore. But it still 工作ed. 

Enter Meal #3 sans iPad. I want to grab her and stuff the 勺 in her mouth, but I know that would be horribly counterproductive in so many ways. So we are taking a break. For the 3rd time.  If we were in a cowboy movie, we would be having a standoff, and 埃维 would be calmly 读 a book while 指向 her pistol 在 me, while I look intensely 在 her and wave a 勺 在 her face. 九号彩票备用 would 在 times yell "Gahhh" and then go back to her book. We've gone out and enjoyed the nice weather, gotten the mail, and tried again. Gahhh! Nope. 

The 喂食 therapist says to be consistent and mean what I say. 九号彩票备用 offered to take the iPad home and give it back to me when she's done with her maternity leave in 九月. 九号彩票备用 was serious. I guess she knows how hard this is going to be. But we got gushing 应用程式roval today for making that decision. 

If it were just the iPad that was a problem, I would throw all caution to the wind. But the other side of it is that there's a 胃肠道 doctor and a 营养ist 坐着 in rocking chairs in the cowboy movie, watching the standoff, and telling me that she'd better not lose weight. "Stay on the growth curve," they drawl, as the tumbleweed rolls by. A black crow caws, mocking me. I stand my ground, throwing them a dirty look. And then I worry that she is losing weight when we 工作ed so hard to get back on the growth curve. "Hey," I say, while she is only in the 3rd percentile on the typical growth chart, let me remind you that she is in the 50th percentile on the 唐氏综合症 chart. I'm not starving my kid! They stop rocking as they digest, and then they say their same mantra, "Just make sure she doesn't lose weight." 

So we're 断奶 off the iPad and 断奶 off overnight formula feeds with her 进料管 在 the same time. Stroke of genius or suckers for punishment? Time will tell.  Pray for us. 埃维's just fine--it's her 父母 who may go insane for the next few weeks. 


Update: 1 week in, and the score is 埃维: 1, Parents: 0. 九号彩票备用 lasted a week with 吃 1/3 less than usual, and we decided that weight loss 在 this point was counterproductive. So we are starting with no iPad and then using the audio, and then using the screen if we need to. With an average of 1.5 oz OFF the iPad, we have recovered now to 4.5 oz ON the iPad. The difference is huge. For now, we will concentrate on beefing her up and will try again once we get her off nighttime 进料管 formula. 

埃维's Favorite Masks

 Hi all!  This is 埃维, and I want to share with you about my favorite 口罩. Mommy tried a few different 类型, and this is the 一 that I ...