Showing posts with label 颅脑切开术. 显示所有帖子
Showing posts with label 颅脑切开术. 显示所有帖子

Evie's Surgery, and Asian Ear Wax

I want to talk about Asian ear wax, but should first say that Evie is doing well! It felt wonderful to have people checking in on us on text and Facebook. 

The day started 在 4:45 am today, so if this post seems delirious, it's because I am delirious. 

为了可能在波士顿儿童学院度过这一天的人的利益,我们首先去了主楼三层的外科病房,然后办理了入住手续。 我们在手术前的等候室里等了一会儿,埃维向所有人招手。 Then we went 进入手术前区,她一直微笑着笑着,以为我们玩得很开心。 我们会见了3位外科医生和麻醉师,讨论了手术过程并签署了同意书。 Erick ended up taking her into the OR (he had to gown up) because she fought the medicine to make her sleepy with every ounce of her 幼儿-ness (that is a word, once you have a 幼儿).

Evie首先戴上了耳管,这称为开颅手术。细小的导管从耳朵内部排出液体。 这仅需4分钟,因此直到我们收到耳鼻喉科医生的来信,他们才让我们下楼吃早餐。他出来告诉我们,她的耳朵里流了一些水,但是很清楚。 

她确实有很多耳垢。显然她有亚洲耳垢,我不知道这是一回事。这不像人们四处谈论耳垢的质地。根据耳鼻喉科(他们本人是亚洲人)的说法,亚洲人的耳朵蜡干且密实。 今天至少有两个亚洲人证实了这一点-一位科学家和一位心脏病专家(去科学!)。 我敢肯定,以某种方式知道此信息对我们所有人都有好处。 

第二步是清除在她的g管部位周围形成的多余组织。外科医生解释说,他认为现在不是去除它的正确时机,因为皮肤已经长出来。 当她永久地退出g管时,他将通过外科手术将其关闭并取出组织。 

第三和第四过程是眼科手术。 达吉博士很棒。 她的目的是减少Evie的双眼都转弯的程度,左眼也稍微向上拉到角落,因此她也调整了负责此动作的肌肉。 在某个时候,她似乎至少需要进行第二次调整,但这在孩子成长过程中很普遍。尽管泪道的解剖学差异导致眼睛流泪,但泪道的泪道探针显示一切都清晰可见。 我们希望她能自己摆脱困境,但现在她的眼睛会流水一会儿。 

Surgical procedure to fix an eye turn is to shorten or re-attach the muscle further back (Source: improveeyesighthq.com)

The tear drainage system--Evie's was clear! (Source: //pediatricimaging.wikispaces.com)

勇敢的小埃维从上午8:30到下午12点接受手术,然后进入康复状态,在那里她对全人类感到失望,因为她遭受了如此的折磨。 看着孩子看上去如此困惑,害怕和痛苦,这是一件艰难的事情。 我们做了所有父母的事情,例如摇摆她,向她唱歌,向她讲述她最喜欢的故事,但是让她停止哭泣并睁开眼睛的是YouTube上的Bob Bob,唱着《 Itsy Bitsy Spider》。 就像关闭了开关,当她感觉到我手中的电话时,哭声立即停止了。如果您的孩子不停地尖叫,那么对于任何一个从麻醉中出来的蹒跚学步的人来说,这都是小费! 

我们决定进入PACU进行漫长的一天。 我想现在他们 over prepare you.  最初,我被告知我们应该期望过夜。 然后我们被告知那将是漫长的一天。 在看到Evie恢复后一个小时,我们被告知我们可能在20分钟后离开。 我们感到非常惊喜,并捆绑了一个非常古板但又生动活泼的Evie。 

Evie came home and immediately went to her 图书. 
Crazy hair, don't care

她很老套,但是我们很高兴回到家。 疯狂的头发,流血的眼泪和流鼻血的家。哦,显然,麻醉消退后的2至3岁的幼儿可能会过度活跃。 现在出现了几天的大量滴耳剂和滴眼剂,希望对我们所有人来说都可以入睡。 但我们很感激她与 出色!非常感谢您的祈祷和良好祝愿!我们感觉到了!

Tomorrow is 手术 day

Evie is going in for her third 手术 of her life tomorrow. I am both excited and dreading this. 

激动: As a result of this 4-in-1 手术, Evie will hopefully see better, have less of an eye turn, hear better, improve her speech 发展, not have watery eyes as frequently, and have less extra tissue around her 进料管 site.

恐惧: 那一刻,当我和护士们将埃维带入手术室并看着他们让她入睡时。 I know it's a bunch of minor procedures, but I don't know if I'll ever get used to this. My friend said it gets better with each procedure. 

But hey--it's not open 心 手术! We already did that with flying colors!

我们目前正在等待日间手术护士明天打电话给她安排手术时间。 在等待了4个月的手术后,我感到害怕,以某种方式我们不得不取消手术日期。 埃维(Evie)上周寒冬了,然后我把婴儿布洛芬藏起来了,这样我们就不会在手术日期后的10天内不小心把它给她。每当她高举某人的表情时,我都会畏缩,告诉自己不要这么发芽。今晚她将斋戒,我们将扎入波士顿,因为凌晨(〜5:30 am)凌乱时没有人流。 手术总共大约需要5个小时,请与3位外科医生轮流帮助Evie进行手术。 

Stay tuned for what it's like to have 斜视 手术, myringotomies, lacrimal dilation, and g-tube granulation removal! 

If you're the praying type, please pray that Evie will do so well after the procedures that she can go home with us the same day. As much as I 爱 Boston Childrens Hospital, I hate 睡眠 there, and so does Evie!

Evie and her doll Charlotte (note the eye turn, which we are hopefully saying goodbye to in 1 day!)


Evie's Favorite Masks

 Hi all!  This is Evie, and I want to share with you about my favorite 口罩. Mommy tried a few different 类型, and this is the 一 that I ...